My son (just 7) has been getting migraines since he was really little. Although it took a really long time for me to recognize then as such since he was not yet verbal enough to give me all the signs I needed to properly identify his headaches. Now that he is older, and can give me better information I realized he had all the classic symptoms, pain behind one eye, sensitivity to light and noise, then the vomiting (sorry!) followed by sleep and then a general ache for a day or two.
So finally, in July, I took him to our family physician who recommended that we see a neurologist. My husband had an aneurysm that ruptured (there's a whole other story) and I had migraines as a child. So to be safe, he suggested we go see a pediatric neurologist. We went to Stony Brook and saw Dr. Gail Schuman, she was absolutely fabulous and made great dietary and supplement suggestions, as his occurrences are not frequent enough to require medication. However, in the course of her exam, she noticed some weaknesses which prompted her to ask about some of his fine motor skills. He is not reading or writing with any great success and he cannot tie his shoes or accurately button a dress shirt. These are not things which worried me, as he is a boy, he has on October birthday, and he is just not motivated to write. He did learn how to ride without training wheels on his 3rd birthday, he fed himself early and has a crazy mastery of sports. But, his Dad and all of his uncles and his grandfather all went to college on full athletic scholarships, so again, I was not connecting any dots.
In any case, the neurologist wrote a prescription for a PT and OT evaluation as well as a neuropsychological battery. All Greek to me, but we have been getting an education. Firstly, dealing with the school district for services as a homeschooler is a nightmare. And we have a pretty compliant and, dare I say, helpful district. I sent them the letter requesting the PT/OT evaluation on 9/6/2008. It took numerous phone calls before I finally received the packet to fill out the official request just before Halloween. This is a lengthy form asking about social and educational skills, home setting, language and other minutia. As my son's primary teacher the task fell to me to complete the form. At the time I received the packet I also received a letter saying that I would be contacted by a District Psychologist to go over the form and if he/she approved it the process would begin. Well, it wasn't until this week that I got a call from the Elementary Psychologist, who was delightful. Thank goodness, because upon review it became painfully obvious that I had not filled out the form adequately. I was trying to be concise, which did not accurately convey the nature of K3's problems. So I was sent home for a do over! I felt like I was 10 :0 But I appreciate her time and am glad she was helpful and sympathetic to our concerns. I redid the form and will meet with her again on Monday to get her signature and have the CSE request forwarded to Pupil Personnel Services. Now, the monkey wrench in this stage is that we have completed a marking period and therefore have to send a quarterly report of our children's progress to PPS. Well, as a result of all the difficulties my son has been having he has not completed all of the work that we delineated in our Individualized Home Instruction Plan (IHIP). Fortunately I have never been late with anything until this year, and even so have only been late with my son and not my daughter. So I called PPS and was told not to worry, that they will note the file. We shall see.
Now, the neuropsych is a whole other story and another nightmare. But that is a post for another time.